Hawaii ALS Residence – ALS Foundation of Hawaii

May 12, 2023: Proclamation Day at the Capitol

May 28, 2023

ALS awareness, Events, Hawaii ALS Residence, May is ALS Awareness Month, People with ALS, Proclamation Day

Tradition- that’s what assures that important things are given due prominence and serve to ensure continuity. Every year, May has always been celebrated as ALS Awareness Month. Here in Hawaii Nei, we don’t only believe that we need to be aware of the concerns of our ALS community, we also need to recognize the enormous responsibility families carry on by living with ALS daily! For the first time since 2019, we trekked to the Capitol to meet with our other…

Remembering Vi Jones-Medusky: A Pioneer Planner for an ALS Residence for Hawaii

March 30, 2023

#NurseFrontliner, ALS Residence, Hawaii ALS Residence, Hawaii ALS Residence, People with ALS, People with ALS, Sharing stories

As we were adjourning from last Tuesday’s Regular Monthly BOD Meeting, Ronaele Whittington, brought up Violet Jones-Medusky. “Didn’t Vi pass away in late March?” Ronaele mused. Honestly, I can’t remember – I have been in many funerals of friends who have passed with ALS in the almost 40 years I’ve been involved with ALS in Hawaii. As memorable as Vi was – and should be in matters ALS in Hawaii – there have been just too many deaths to cram…

#GivingTuesday: “Let the sun shine through…”

November 26, 2022

#GivingTuesday2022, ALS awareness, ALS Residence, Hawaii ALS Residence, Help pALS, People with ALS

The basest of species, we are told, simply do not have the physical structure to provide the basis for complex emotions such as compassion. Paramecia and reptiles just don’t have it in them to feel anything beyond self-preserving “reactions” such as when in pain. Only more developed species have awareness beyond themselves that shows “others” as something more than their next meal. I’m talking generalities here (I have to qualify my statement, before someone who’s watched Jurassic Park points out,…