#HIALSCommunity – ALS Foundation of Hawaii

Online Auction To Fund Lifesaving Treatment For Local Artist Eric Chun

September 23, 2021

Help pALS, Helpin pALS, Sharing stories, Uncategorized

September 23, 2021, Honolulu, HI – Local artist, waterman, and small business owner Eric Chun announced the launch of an online auction today to raise funds for lifesaving therapy in his battle against a disease that has taken multiple members of his family. Since his 2018 diagnosis of ALS, Eric has received cutting edge treatments in San Diego instrumental in prolonging his life and delaying debilitating disability. Eric now seeks to participate in a new treatment therapy which has shown…

Rita Melville Alarcon: “… Breastless” But SO MUCH more!

October 25, 2020

ALS awareness, News, Sharing stories

In 2015, Rita’s mom, Patricia, started experiencing slurred speech and progressive weakness. Living in Hawaii while her children were in the mainland, Patricia kept her health concerns to herself. When she could no longer keep it a secret, her disability had gone much further along. When they learned, Rita and her siblings flailed around in shock. Eventually, they were able to negotiate among themselves the best way they could care for Mom, considering many factors, not the least of which…

MAY, 2020 AS ALS AWARENESS MONTH: WHAT’S HAPPENING, HAWAII?

May 2, 2020

ALS awareness, Events, News, Presentations

Short answer is: None, in person. The past six years, Hawaii’s ALS Community celebrated May as ALS Awareness and Families Appreciation Month in many ways. Usually, the month starts with a series of Proclamations by local officials. The Governor’s Proclamation was read by the Governor in a solemn ceremony in the State Capitol Ceremony Room attended by patients, their families, caregivers, and representatives of the different service provider agencies in the state. With the pandemic continuing to rage in our…

Brian Burke, Katherine’s Li’l Brother, Dies at 61

July 24, 2019

Help pALS, News

Brian Burke’s life story was not always a sad one. He was born the youngest of five children to Cecilia and Darrell Burke. Like any health boy, Brian grew up with his family, which included Big Sis Katherine, in Benton Harbor, Michigan. Early life was the usual – elementary, high school, an Associate degree in college. He didn’t engage in any sport but football and basketball occupied his interest as a bed-bound spectator in the years he had ALS. Sometime before 2002, when…

A Well-attended Governor Ige Proclamation!

May 16, 2019

ALS awareness, Events, News

May 11, 2019, Honolulu, Hawaii. Last Friday, May 3, a group of community supporters attended the Governor Ige Proclamation of May as ALS Awareness and ALS Families Appreciation Month. This was the biggest group thus far in the five years of celebrating May as ALS Month in Hawaii. For the first time, the Lieutenant Governor substituted for the governor who was not available that day. LG Josh Green is not new to ALS families concerns. ALSFH Board members Whittington, O’Connor,…