ALS awareness – Page 3 – ALS Foundation of Hawaii

A FRONTLINE NURSE’S EXPERIENCE WITH DAD’S ALS

May 13, 2020

#ALSinCOVID, #NurseFrontliner, ALS awareness, News, Sharing stories

May 13, 2020, Kailua, HI. Norgen Orpilla Dalit was an experienced nurse from the Philippines when she came to the US in 1991. Her older sister, also a nurse, had sent her to nursing school, for which Norgen has remained specially thankful. While in the Philippines, she worked in the OR and OB-GYN Labor and Delivery. Prior to finally settling in the US, she first detoured to Saudi Arabia, becoming part of the huge nursing force recruited from the…

MAY, 2020 AS ALS AWARENESS MONTH: WHAT’S HAPPENING, HAWAII?

May 2, 2020

ALS awareness, Events, News, Presentations

Short answer is: None, in person. The past six years, Hawaii’s ALS Community celebrated May as ALS Awareness and Families Appreciation Month in many ways. Usually, the month starts with a series of Proclamations by local officials. The Governor’s Proclamation was read by the Governor in a solemn ceremony in the State Capitol Ceremony Room attended by patients, their families, caregivers, and representatives of the different service provider agencies in the state. With the pandemic continuing to rage in our…

REFLECTIONS ON SOCIAL DISTANCING: HOW ARE WE “BEHAVING” IT?

March 25, 2020

ALS awareness, Service provision

The World Health Organization handbook, “Managing Epidemics: Key Facts about Major Deadly Diseases,” identifies four different stages: 1) Emergence: the introduction of the disease into a community;2) Localized transmission: where cases of infection sporadically appear in a community;3) Amplification: where the germ is able to transmit from person to person and causes a sustained outbreak in the community, threatening to spread beyond it; and4) Reduction: decrease of human-to-human transmission of the germ because people develop immunity and/or effective interventions to…

Gleason House for pALS: The House that a Post-Hurricane Celebrity Built

January 14, 2020

ALS awareness, ALS Philanthropy, Events, Helpin pALS, Networking/Learning Opportunities, News

January 14, 2020, Kailua, HI: Tomorrow, coinciding with the opening of the 116th US Congress in Washington, a man in a power wheelchair will roll on to receive the US Congressional Gold Medal of Honor, the highest civilian award given by Congress. It had been given to only 163 civilian entities, the first recipient being George Washington- the first President of the nation – in 1776. Steve Gleason, is truly a man of destiny. His celebrity arises from the confluence…

An Open Letter to Bill Gates, on the Occasion of Receiving the Professor Hawking Fellowship Award

November 27, 2019

ALS awareness, ALS Philanthropy, Events, Help pALS, News

Dear Bill, I just read your 2019 Professor Hawking Fellowship lecture delivered in Cambridge. I am grateful that you have taken up global health as focus for your philanthropy. My background is public (international) health, so I understood every bit of your concern. I was born in the Philippines when it was still a developing nation. In 1976, after graduation from Nursing, I joined the faculty of the UP Institute of Health Sciences. At that time, it was creating…

Topical Presentations Keep ALSFH in Community’s Mind

October 23, 2019

ALS awareness, Presentations

October 23, 2019, Kailua, HI. Requests from a number of community-based organizations for presentations on several topics of interest, varying from “Exercises for the Elderly,” to “Nursing Management of the Patient with ALS,” keep ALSFH and its mission in the minds of the audience. It is customary to save a few minutes after presentations for a short spiel on ALSFH. Maylynn Wong, Manager of St. Francis Healthcare Volunteer Programs, organizes course offerings for groups of family caregivers interested in a…

Mahalo Nui Loa to Oahu Nursery Growers Association!

September 23, 2019

ALS awareness, Events, Fundraising Project, Partners

September 14, 2019, Honolulu, HI. The Oahu Nursery Growers Association (ONGA) once again has proven that it not only plants flora and foliage, it also plants goodwill in the community. The 8-member hui of nursery growers holds an annual plant sale from which it donates a portion of the proceeds. At this year’s event, on September 7 (Saturday) and 8 (Sunday), 2019, ALSFH was its designated beneficiary. The weekend sale was held at the Washington Middle School cafeteria on S. King Street. During the…

MAHALO, St. John Apostle and Evangelist Parish, for ALSFH Display Corner

July 23, 2019

ALS awareness, Events, News

July 23, 2019, Kailua, Hawaii. Last Saturday, July 20, 2019, The St. John Apostle and Evangelist (SJAE) Parish in Mililani staged its first ever Health and Well-being Fair at the Kipapa Park grounds. The fair was organized by the parish’s Health Ministry Committee, ably led by retired nurse Bonnie delos Santos. After the invocation and warmup Tai Chi exercises led by a community volunteer, Wini Fronda of Humana and parishioner Steven Santiago led the walk around the park perimeter. It…

Mahalo to Pacific Business News for Featuring ALSFH in July Signature Event

July 20, 2019

ALS awareness, Events, Networking/Learning Opportunities, News

July 20, 2019, Honolulu, HI. Every month for their Signature Events, Pacific Business News (PBN) features a non-profit the news journal determines best fits the theme for the event. Among others, the recognition awards inclusion of logo in the marketing instruments for the event, a display table to showcase the non-profit’s mission, lunch for two representatives from the NP, and an opportunity to network with the other participants. On July 18, 2019, PBN featured ALSFH for its signature event “State…

“Lei of Remembrance” Memorial: A Fitting End to May, 2019 ALS Month-long Celebrations

June 17, 2019

ALS awareness, Events

Honolulu, Hawaii – It is an annual ritual – the fifth, this year – that our ALS community celebrates the Friday before the public’s Memorial Day. We bring out the signs that says, Mahalo, Hawaii!, to set the mood. Our state began celebrating “May as ALS Awareness and Families Appreciation Month,” with the Governor’s Proclamation in the Capitol, in City and County of Honolulu, and in other neighbor islands. We focused our attention into creating the social, educational, and political…