Helpin pALS – ALS Foundation of Hawaii

Online Auction To Fund Lifesaving Treatment For Local Artist Eric Chun

September 23, 2021

Help pALS, Helpin pALS, Sharing stories, Uncategorized

September 23, 2021, Honolulu, HI – Local artist, waterman, and small business owner Eric Chun announced the launch of an online auction today to raise funds for lifesaving therapy in his battle against a disease that has taken multiple members of his family. Since his 2018 diagnosis of ALS, Eric has received cutting edge treatments in San Diego instrumental in prolonging his life and delaying debilitating disability. Eric now seeks to participate in a new treatment therapy which has shown…

Richard Tran: Helping Build an ALS Residence for Hawaii, One Burger at a Time

May 6, 2021

#ALSinCOVID, Fundraising Project, Helpin pALS, Sharing stories, volunteers

My niece, Darlene, who is one-half of my so-called “IT Department,” invited a couple of her friends from Seattle to spend a week on Oahu. One of them was Richard who laughed his funny way into our hearts. He ended up extending his stay into Christmas, to participate in our annual holiday shenanigans, usually orchestrated by the young people in my big Filipino family. In short, my family took to him as he fell in love with Oahu hard. He…

Her Words, Not Mine

April 7, 2021

ALS awareness, Helpin pALS, Networking/Learning Opportunities, Sharing stories

Part of our mission is making people aware about what life with ALS is like for both patient and his family. Prior to the pandemic, I was regularly invited to speak before groups, opportunities which I rarely refuse. I have been a nurse educator all my life and have tried every way of presenting material so it becomes vivid to my audience, so that they come away more understanding of the material. When I come short of that expectation, I…

St. Francis Healthcare Sponsors ALS Caregiver Class

August 6, 2020

ALS awareness, Helpin pALS, Networking/Learning Opportunities, Partners, Presentations, Sharing stories

8 August 2020, Kailua – In the past two years, I have been teaching in-person classses for the St Francis Healthcare Family Caregiver Program twice a year. In the beginning, Shaun and Renee Brewer would accompany me so that a pALS’s perspective would enhance the presentation. For the past two times, Sandy and John Repczynski have taken over from the Brewers. Like much of everything, the current pandemic has forced the classes to be reconfigured; instead of in-person, they will…

Gleason House for pALS: The House that a Post-Hurricane Celebrity Built

January 14, 2020

ALS awareness, ALS Philanthropy, Events, Helpin pALS, Networking/Learning Opportunities, News

January 14, 2020, Kailua, HI: Tomorrow, coinciding with the opening of the 116th US Congress in Washington, a man in a power wheelchair will roll on to receive the US Congressional Gold Medal of Honor, the highest civilian award given by Congress. It had been given to only 163 civilian entities, the first recipient being George Washington- the first President of the nation – in 1776. Steve Gleason, is truly a man of destiny. His celebrity arises from the confluence…