#ALS – Page 2 – ALS Foundation of Hawaii

A FRONTLINE NURSE’S EXPERIENCE WITH DAD’S ALS

May 13, 2020

#ALSinCOVID, #NurseFrontliner, ALS awareness, News, Sharing stories

May 13, 2020, Kailua, HI. Norgen Orpilla Dalit was an experienced nurse from the Philippines when she came to the US in 1991. Her older sister, also a nurse, had sent her to nursing school, for which Norgen has remained specially thankful. While in the Philippines, she worked in the OR and OB-GYN Labor and Delivery. Prior to finally settling in the US, she first detoured to Saudi Arabia, becoming part of the huge nursing force recruited from the…

MAY, 2020 AS ALS AWARENESS MONTH: WHAT’S HAPPENING, HAWAII?

May 2, 2020

ALS awareness, Events, News, Presentations

Short answer is: None, in person. The past six years, Hawaii’s ALS Community celebrated May as ALS Awareness and Families Appreciation Month in many ways. Usually, the month starts with a series of Proclamations by local officials. The Governor’s Proclamation was read by the Governor in a solemn ceremony in the State Capitol Ceremony Room attended by patients, their families, caregivers, and representatives of the different service provider agencies in the state. With the pandemic continuing to rage in our…

Godspeed, Paul H. Gagnon: Beloved Friend

December 26, 2019

News

December 26, 2019, Kailua, HI. If there were something you would take away, say, from a short meeting with Paul Gagnon, it would be that his eyes twinkled even if talking about something serious. You’d notice he would follow a profound statement with a witty remark. Then his cheeks would soon crease in folds as his smile breaks and reaches his eyes. That’s how I remember Paul, the mustachio’ed patriarch of his large clan: his thoughtful ideas, steadfast calmness despite…

Brian Burke, Katherine’s Li’l Brother, Dies at 61

July 24, 2019

Help pALS, News

Brian Burke’s life story was not always a sad one. He was born the youngest of five children to Cecilia and Darrell Burke. Like any health boy, Brian grew up with his family, which included Big Sis Katherine, in Benton Harbor, Michigan. Early life was the usual – elementary, high school, an Associate degree in college. He didn’t engage in any sport but football and basketball occupied his interest as a bed-bound spectator in the years he had ALS. Sometime before 2002, when…

MAHALO, St. John Apostle and Evangelist Parish, for ALSFH Display Corner

July 23, 2019

ALS awareness, Events, News

July 23, 2019, Kailua, Hawaii. Last Saturday, July 20, 2019, The St. John Apostle and Evangelist (SJAE) Parish in Mililani staged its first ever Health and Well-being Fair at the Kipapa Park grounds. The fair was organized by the parish’s Health Ministry Committee, ably led by retired nurse Bonnie delos Santos. After the invocation and warmup Tai Chi exercises led by a community volunteer, Wini Fronda of Humana and parishioner Steven Santiago led the walk around the park perimeter. It…

Mahalo to Pacific Business News for Featuring ALSFH in July Signature Event

July 20, 2019

ALS awareness, Events, Networking/Learning Opportunities, News

July 20, 2019, Honolulu, HI. Every month for their Signature Events, Pacific Business News (PBN) features a non-profit the news journal determines best fits the theme for the event. Among others, the recognition awards inclusion of logo in the marketing instruments for the event, a display table to showcase the non-profit’s mission, lunch for two representatives from the NP, and an opportunity to network with the other participants. On July 18, 2019, PBN featured ALSFH for its signature event “State…