ALSFH – ALS Foundation of Hawaii

ALS Foundation of Hawaii: Status Report as of December 31, 2021

January 7, 2022

Hawaii ALS Residence, News, Status Report, 2017-2021

ALS FOUNDATION OF HAWAII STATUS REPORT as of DECEMBER 31, 2021 I. INTRODUCTION When we developed the concept for the ALS Foundation of Hawaii in 2016-17, we agreed to have one mission: to establish an ALS RESIDENCE that would provide the kind of long-term humane and effective specialty care that people with ALS (pALS) required and deserved using state-of-the-art technology. In the intervening years, however, we quickly learned that the festering need for short-term respite care for family caregivers has…

August Babies: Katherine and Divina Request Donations for Birthdays

August 24, 2020

#ALSinCOVID, ALS Philanthropy, Fundraising Project, Hawaii ALS Residence

August 24, 2020, Kailua. – The pandemic has dramatically and irrevocably changed the landscape of life on earth. In the non-profit sector, fundraising is made more difficult by the combination of continuing need for public support and the restrictions on in-person contact. Consequently, non-profits switch to socially distant ways of requesting for needed support. We, at ALSFH, are still understanding the challenges of fundraising mainly by social media. Aside from being a non-techie three-member Board, we also have no paid…

Leni Marie Acosta Knight: A Gift of Art from the Heart

August 17, 2020

ALS awareness, ALS Philanthropy, Fundraising Project, Hawaii ALS Residence, News, Partners

August 15, 2020, Kailua – Where there is kindness among people, there is hope for our human race, especially in these uncertain times. One such kind person is Leni Marie Acosta Knight, a petite, soft-spoken, unassuming lady who was still in her teens when she migrated with her family from the Philippines to join her dad in the United States. When she arrived in Hawaii, she attended school, then moved to Los Angeles, starting a career in commodities and real…

“Give ALOHA” to ALSFH #78937, by September 30!

September 23, 2019

Fundraising Project, Partners

September 23, 2019, Kailua, HI. The annual “Give Aloha” Campaign of Foodland and Western Union Foundation in Hawaii started September 1st to continue the legacy of founder, Maurice “Sully” Sullivan of giving back to the community. Sully’s Foundation matches individual contributions, dollar for dollar, up to $249. Foodland gives more than $250,000 annually to non-profits that participate in the program. For the second time in a row, ALSFH signed up to participate in the program. To donate to ALSFH, one simply…

Mahalo Nui Loa to Oahu Nursery Growers Association!

September 23, 2019

ALS awareness, Events, Fundraising Project, Partners

September 14, 2019, Honolulu, HI. The Oahu Nursery Growers Association (ONGA) once again has proven that it not only plants flora and foliage, it also plants goodwill in the community. The 8-member hui of nursery growers holds an annual plant sale from which it donates a portion of the proceeds. At this year’s event, on September 7 (Saturday) and 8 (Sunday), 2019, ALSFH was its designated beneficiary. The weekend sale was held at the Washington Middle School cafeteria on S. King Street. During the…

Brian Burke, Katherine’s Li’l Brother, Dies at 61

July 24, 2019

Help pALS, News

Brian Burke’s life story was not always a sad one. He was born the youngest of five children to Cecilia and Darrell Burke. Like any health boy, Brian grew up with his family, which included Big Sis Katherine, in Benton Harbor, Michigan. Early life was the usual – elementary, high school, an Associate degree in college. He didn’t engage in any sport but football and basketball occupied his interest as a bed-bound spectator in the years he had ALS. Sometime before 2002, when…