#CareofpALS – ALS Foundation of Hawaii

St. Francis Healthcare Sponsors ALS Caregiver Class

August 6, 2020

ALS awareness, Helpin pALS, Networking/Learning Opportunities, Partners, Presentations, Sharing stories

8 August 2020, Kailua – In the past two years, I have been teaching in-person classses for the St Francis Healthcare Family Caregiver Program twice a year. In the beginning, Shaun and Renee Brewer would accompany me so that a pALS’s perspective would enhance the presentation. For the past two times, Sandy and John Repczynski have taken over from the Brewers. Like much of everything, the current pandemic has forced the classes to be reconfigured; instead of in-person, they will…

The Queen’s Medical Center Social Workers Learn About ALS Care

May 11, 2019, Honolulu, Hawaii. “How to Help Families with ALS” was presented to members of The Queen’s Medical Center Social Work Department on Tuesday, May 7, at the Queen’s Conference Center. The hour-long PowerPoint presentation which I anchored, ably assisted by Ronaele and Katherine, both retired social workers, discussed the characteristics of ALS, implications for family care, and community resources available. It was richly enhanced by personal experiences from all three of us from our own journeys with ALS…