Events – Page 2 – ALS Foundation of Hawaii

Gleason House for pALS: The House that a Post-Hurricane Celebrity Built

January 14, 2020

ALS awareness, ALS Philanthropy, Events, Helpin pALS, Networking/Learning Opportunities, News

January 14, 2020, Kailua, HI: Tomorrow, coinciding with the opening of the 116th US Congress in Washington, a man in a power wheelchair will roll on to receive the US Congressional Gold Medal of Honor, the highest civilian award given by Congress. It had been given to only 163 civilian entities, the first recipient being George Washington- the first President of the nation – in 1776. Steve Gleason, is truly a man of destiny. His celebrity arises from the confluence…

An Open Letter to Bill Gates, on the Occasion of Receiving the Professor Hawking Fellowship Award

November 27, 2019

ALS awareness, ALS Philanthropy, Events, Help pALS, News

Dear Bill, I just read your 2019 Professor Hawking Fellowship lecture delivered in Cambridge. I am grateful that you have taken up global health as focus for your philanthropy. My background is public (international) health, so I understood every bit of your concern. I was born in the Philippines when it was still a developing nation. In 1976, after graduation from Nursing, I joined the faculty of the UP Institute of Health Sciences. At that time, it was creating…

Mahalo Nui Loa to Oahu Nursery Growers Association!

September 23, 2019

ALS awareness, Events, Fundraising Project, Partners

September 14, 2019, Honolulu, HI. The Oahu Nursery Growers Association (ONGA) once again has proven that it not only plants flora and foliage, it also plants goodwill in the community. The 8-member hui of nursery growers holds an annual plant sale from which it donates a portion of the proceeds. At this year’s event, on September 7 (Saturday) and 8 (Sunday), 2019, ALSFH was its designated beneficiary. The weekend sale was held at the Washington Middle School cafeteria on S. King Street. During the…

MAHALO, St. John Apostle and Evangelist Parish, for ALSFH Display Corner

July 23, 2019

ALS awareness, Events, News

July 23, 2019, Kailua, Hawaii. Last Saturday, July 20, 2019, The St. John Apostle and Evangelist (SJAE) Parish in Mililani staged its first ever Health and Well-being Fair at the Kipapa Park grounds. The fair was organized by the parish’s Health Ministry Committee, ably led by retired nurse Bonnie delos Santos. After the invocation and warmup Tai Chi exercises led by a community volunteer, Wini Fronda of Humana and parishioner Steven Santiago led the walk around the park perimeter. It…

Mahalo to Pacific Business News for Featuring ALSFH in July Signature Event

July 20, 2019

ALS awareness, Events, Networking/Learning Opportunities, News

July 20, 2019, Honolulu, HI. Every month for their Signature Events, Pacific Business News (PBN) features a non-profit the news journal determines best fits the theme for the event. Among others, the recognition awards inclusion of logo in the marketing instruments for the event, a display table to showcase the non-profit’s mission, lunch for two representatives from the NP, and an opportunity to network with the other participants. On July 18, 2019, PBN featured ALSFH for its signature event “State…

“Lei of Remembrance” Memorial: A Fitting End to May, 2019 ALS Month-long Celebrations

June 17, 2019

ALS awareness, Events

Honolulu, Hawaii – It is an annual ritual – the fifth, this year – that our ALS community celebrates the Friday before the public’s Memorial Day. We bring out the signs that says, Mahalo, Hawaii!, to set the mood. Our state began celebrating “May as ALS Awareness and Families Appreciation Month,” with the Governor’s Proclamation in the Capitol, in City and County of Honolulu, and in other neighbor islands. We focused our attention into creating the social, educational, and political…

“With Grace” Run/Walk/Roll Energizes!

May 16, 2019

ALS awareness, Events, Fundraising Project, News

The 5th Annual “With Grace” Run/Walk/Roll went off with a bang at 8 am at Kailua Beach with a record 270 registrants making their way through Lanikai Loop. At the starting line, race coordinator, Julie Hess, stood on a cooler to thank the participants and reminded them what they were supporting – the race for a cure for ALS. After the short talk, husband Steve Hess, sounded off the horn to start the race. While…

The Queen’s Medical Center Social Workers Learn About ALS Care

May 16, 2019

ALS awareness, Events, News, Presentations

May 11, 2019, Honolulu, Hawaii. “How to Help Families with ALS” was presented to members of The Queen’s Medical Center Social Work Department on Tuesday, May 7, at the Queen’s Conference Center. The hour-long PowerPoint presentation which I anchored, ably assisted by Ronaele and Katherine, both retired social workers, discussed the characteristics of ALS, implications for family care, and community resources available. It was richly enhanced by personal experiences from all three of us from our own journeys with ALS…

A Well-attended Governor Ige Proclamation!

May 16, 2019

ALS awareness, Events, News

May 11, 2019, Honolulu, Hawaii. Last Friday, May 3, a group of community supporters attended the Governor Ige Proclamation of May as ALS Awareness and ALS Families Appreciation Month. This was the biggest group thus far in the five years of celebrating May as ALS Month in Hawaii. For the first time, the Lieutenant Governor substituted for the governor who was not available that day. LG Josh Green is not new to ALS families concerns. ALSFH Board members Whittington, O’Connor,…

Mayor Caldwell Proclamation: First ALS Awareness Month Event on Oahu

May 16, 2019

ALS awareness, Events, News

May 11, 2019, Honolulu, Hawaii. A small but dedicated group of ALS supporters skipped afternoon nap time to attend the 2:30 pm Mayor Caldwell Proclamation of “May as ALS Awareness and ALS Families Appreciation Month” at the Mayor’s Conference Room at Honolulu Hale. The simple ceremony was led by City Managing Director Roy Amemiya for the second time in as many years the Mayor Proclamation was held in Honolulu. After MD Amemiya received the lei from Ronaele, he asked the…