News

May 26, 2023: Sign-Waving and “Lei of Remembrance” Memorial Ceremony

May 31, 2023
ALS awareness, Events, May is ALS Awareness Month, News, pALS, People with ALS

The Friday before Memorial Day, I drove to this quaint, orchid shop in Kahaluu, past the elementary school into this unassuming driveway where a small, barn-like shed with galvanized iron sheets for walls, houses a busy work arrangement of tables and chairs topped by all manner of workshop paraphernalia. A tall, lean, elderly lady with an envy-producing, ramrod-straight back, charmingly welcomes me with a smile. She knows what I came for – the 300+ purple dendrobium orchids that I will…

0
Read More

ALS Foundation of Hawaii: Status Report as of December 31, 2021

January 7, 2022
Hawaii ALS Residence, News, Status Report, 2017-2021

ALS FOUNDATION OF HAWAII STATUS REPORT as of DECEMBER 31, 2021 I. INTRODUCTION When we developed the concept for the ALS Foundation of Hawaii in 2016-17, we agreed to have one mission: to establish an ALS RESIDENCE that would provide the kind of long-term humane and effective specialty care that people with ALS (pALS) required and deserved using state-of-the-art technology. In the intervening years, however, we quickly learned that the festering need for short-term respite care for family caregivers has…

0
Read More

MAY 2021 as ALS Awareness and Families Appreciation Month

April 21, 2021
#ALSinCOVID, ALS awareness, Events, May is ALS Awareness Month, News

We look back with fondness to the time when we were able to gather to celebrate May as OUR month. This coming May is the second during this time of Covid pandemic. Hawaii, like most states in the continental US is still under restrictions for public health security. Thus, our normally highly participated celebratory events are going to be just as quiet like last year’s. However, our efforts at bringing awareness to the community are no less robust and has…

0
Read More

Rita Melville Alarcon: “… Breastless” But SO MUCH more!

October 25, 2020
ALS awareness, News, Sharing stories

In 2015, Rita’s mom, Patricia, started experiencing slurred speech and progressive weakness. Living in Hawaii while her children were in the mainland, Patricia kept her health concerns to herself. When she could no longer keep it a secret, her disability had gone much further along.  When they learned, Rita and her siblings flailed around in shock. Eventually, they were able to negotiate among themselves the best way they could care for Mom, considering many factors, not the least of which…

0
Read More

Donate to ALSFH through Foodland’s “Give Aloha” Campaign

August 23, 2020
ALS Philanthropy, Fundraising Project, Hawaii ALS Residence, News, Partners

August 23, 2020, Kailua, HI. – According to Wikipedia, an Irish immigrant, Maurice J. “Sully” Sullivan and See Goo Lau together founded Foodland Super Markets – the oldest, largest, and only locally-owned supermarket chain in Hawaii. The grocery store chain is in all islands although some have been closed recently due to competition from big-box stores, according to Jenai S. Wall, Sullivan’s daughter and current company President and CEO. Despite these changes, Foodland  continues to hold its annual “Give Aloha”…

0
Read More

Leni Marie Acosta Knight: A Gift of Art from the Heart

August 17, 2020
ALS awareness, ALS Philanthropy, Fundraising Project, Hawaii ALS Residence, News, Partners

August 15, 2020, Kailua – Where there is kindness among people, there is hope for our human race, especially in these uncertain times. One such kind person is Leni Marie Acosta Knight, a petite, soft-spoken, unassuming lady who was still in her teens when she migrated with her family from the Philippines to join her dad in the United States. When she arrived in Hawaii, she attended school, then moved to Los Angeles, starting a career in commodities and real…

0
Read More

“Lei of Remembrance” Memorial Ceremony, 2020 Edition

May 22, 2020
#ALSinCOVID, ALS awareness, Events, Help pALS, News

23 May, 2020, Kailua, HI. This year, the “Lei of Remembrance ceremony will be presented in video form. Every year for the past six years, the annual celebration – the ultimate culminating annual May event here in Hawaii – has been held in the courtyard of the State Capitol. In support of the State’s plan to stem the pandemic, the ceremony will be streamed for the first time on 29 May, Friday at 5-5:30pm. Streaming site will be announced midweek.…

0
Read More

IN LIEU OF “WITH GRACE” RUN/WALK, A T-SHIRT FUNDRAISER

May 13, 2020
ALS awareness, News

The Annual “With Grace” Run/walk was canceled this year. Julie Hess, coordinator of the annual event, replaced it with an online Shirt Fundraiser on CustomInk, which will continue until May 16. “There are five different styles of shirts,” enthused Julie,” We originally set a goal of 50 purchases. I am happy to see that we have exceeded the goal. Mahalo to everyone who has helped. It means so much to my family as well as to Jeff’s.” Steve and Julie…

0
Read More

About Us
Our Stories
Help Us

Upcoming Events
Contact Us

Copyright © 2024 ALS Foundation of Hawaii. All Rights Reserved.