News – Page 4 – ALS Foundation of Hawaii

HiNAMI Recognizes Teaching Volunteers for the 17th Year: ALSFH was there!

November 20, 2018

November 19, 2018, Kailua, HI. Since 2001, Hawaii Nurse Advocates and Mentors, Inc. (HiNAMI) has been offering free review classes to graduates of foreign nursing schools to help them pass the RN-NCLEX licensing examinations. Current teaching and mentoring volunteer staff now include those who have been through these review classes themselves. Founding President Bea Ramos-Razon is the energy and force behind this long-lasting community service that provides opportunities for professional nurses from academe and health care institutions to help swell…

2018 Veteran’s Day at the Natatorium War Memorial: ALSFH was there!

November 20, 2018

ALS awareness, Events, News

November 19, 2018, Kailua, HI. On Veterans Day, Sunday, November 11, 2018, Hawaii celebrated the end of World War I with a whole day series of presentations from 6am at the Waikiki Natatorium. It ended at 8:45 pm with a fireworks immediately after a full orchestra played nostalgia-era standards. Schoen Safotu, Coordinator of the VA Voluntary Services called for volunteers to help at this first ever multi-agency event commemoration of the World War I Centennial. ALSFH President Divina Robillard and…

Bowling Fundraiser Deemed a Success

November 20, 2018

ALS awareness, Events, Fundraising Project, News, Uncategorized

November 20, 2018, Kailua, HI. The first public fundraiser that ALSFH held at the historic Pali Lanes on Saturday, November 10, 2018 in Kailua was described as “successful.” A grateful and smiling ALSFH President Divina Robillard said,”The rest of the board was reluctant at first because of what looked like a lot of work to be done in so little time. And it was work we had never done before! But they eventually came around and it got done!” The…

Cheryl Kellett +

October 2, 2018

Events, News

ALSFH President Divina Telan Robillard recently visited Cheryl Kellett in the family home in Kalihi in reply to husband, Mel’s request for respite help. In a phone conversation earlier today, Bristol Hospice RN Sheena Erice said that Cheryl passed away from natural causes on September 26, three days after Robillard posted about the visit. She further explained that Cheryl’s case had been transferred to Islands Hospice because Bristol does not have a policy of assisting patients off the ventilator, which…

ALSFH Surpasses $1000 Goal in FB Birthday Fundraiser in 48 Hours

August 25, 2018

ALS awareness, Fundraising Project, News

August 25, 2018, Kailua, Hawaii. Board of Director members, Katherine O’Connor and Divina Telan Robillard are celebrating their birthdays this month. Katherine’s birthday is August 26 and Divina, the 29th. To celebrate their birth month, both BOD members created fundraisers on Facebook. Divina’s Facebook fundraiser goal of $1000 was surpassed within 48 hours. Eighteen FB friends donated directly to the fundraiser which continues for one more week. Katherine also has a FB fundraiser continuing for another week. The total…

Amateur Writers Convene for Book Project

August 8, 2018

ALS awareness, Fundraising Project, Meetings, News

August 7, 2018, Honolulu, Hawaii. A group of amateur writers started meeting with UH Professor Emeritus Virgie Chattergy to develop a book focusing on experiences living with ALS. As of this writing, group membership consists of Ronaele Whittington, Justin Hendrix, Rita Melville Alarcon, Catherine Sophian, Alexa-Rae Telan, and Divina Telan Robillard. Last year, the Filipino Association of University Women (FAUW) published an anthology of essays entitled, “Pinay: Culture Bearers of the Filipino Diaspora.” It was edited by Professor Chattergy and…

Waipahu High School Students Learn About ALS and Nursing Careers

July 19, 2018

ALS awareness, News

July 18, 2018. Waipahu, HI. Students in Dr. Ric Custodio’s “Survey of Health Professions” class at Waipahu High School learned how Divina Telan Robillard’s nursing background helped in providing care for her husband, Britt Robillard, PhD, when he was diagnosed with ALS in late 1984. Dr. Robillard lived decades beyond the average 3-5 year lifespan of pALS. He passed away in 2015, four years after retirement from his faculty position in the University of Hawaii Department of Sociology. Telan Robillard…

Board Advocates for Vets with ALS

July 11, 2018

Meetings, News

July 11, 2018, Honolulu. The ALSFH Board met this afternoon with US Senator Mazie Hirono’s Hawaii-based staffer, Carlos Santana, to share the Eden Alternative (EA) philosophy on which the ALS Residence model is based. Senator Hirono is a member of the Senate Veterans Affairs committee. Eden Alternative promotes growth and development throughout all stages of life. According to EA, the “three plagues of loneliness, helplessness, and boredom account for the bulk of suffering in a human community.” The ALSFH strongly advocates…