Partners – ALS Foundation of Hawaii

Christmas Caroling: A Delightful Service and Tradition**

January 7, 2023

ALS awareness, ALSFH Christmas Message, Christmas Party, ChristmasCelebrations, Events, Partners, Service provision, volunteers

The pandemic years certainly put a damper on a number of activities worth doing, especially those that encourage socializing and connecting with fellow human beings. Sighs of relief were exhaled all over the world when the pandemic’s scourge was cut to a manageable level. Things are inching towards normal, including the revival of Christmas traditions that were severely verboten in the past two years. One of these is Christmas caroling. On December 13 last year, an opportunity arose for a…

Julie Hess: An Eye for Art, A Heart for Earth

November 16, 2021

Events, Partners, volunteers

One doesn’t have to be a global leader nor a scientist to understand the impact of climate change on our planet. Among other things, small island-states like our own in the vast Pacific stand to bear the brunt of rising waters. This situation was made visually starker in a recent speech on the impact of global warming by Tuvalu’s minister delivered and filmed while knee-deep in ocean water. It was another global disaster – still possibly triggered by relentless development…

Donate to ALSFH through Foodland’s “Give Aloha” Campaign

August 23, 2020

ALS Philanthropy, Fundraising Project, Hawaii ALS Residence, News, Partners

August 23, 2020, Kailua, HI. – According to Wikipedia, an Irish immigrant, Maurice J. “Sully” Sullivan and See Goo Lau together founded Foodland Super Markets – the oldest, largest, and only locally-owned supermarket chain in Hawaii. The grocery store chain is in all islands although some have been closed recently due to competition from big-box stores, according to Jenai S. Wall, Sullivan’s daughter and current company President and CEO. Despite these changes, Foodland continues to hold its annual “Give Aloha”…

Leni Marie Acosta Knight: A Gift of Art from the Heart

August 17, 2020

ALS awareness, ALS Philanthropy, Fundraising Project, Hawaii ALS Residence, News, Partners

August 15, 2020, Kailua – Where there is kindness among people, there is hope for our human race, especially in these uncertain times. One such kind person is Leni Marie Acosta Knight, a petite, soft-spoken, unassuming lady who was still in her teens when she migrated with her family from the Philippines to join her dad in the United States. When she arrived in Hawaii, she attended school, then moved to Los Angeles, starting a career in commodities and real…

St. Francis Healthcare Sponsors ALS Caregiver Class

August 6, 2020

ALS awareness, Helpin pALS, Networking/Learning Opportunities, Partners, Presentations, Sharing stories

8 August 2020, Kailua – In the past two years, I have been teaching in-person classses for the St Francis Healthcare Family Caregiver Program twice a year. In the beginning, Shaun and Renee Brewer would accompany me so that a pALS’s perspective would enhance the presentation. For the past two times, Sandy and John Repczynski have taken over from the Brewers. Like much of everything, the current pandemic has forced the classes to be reconfigured; instead of in-person, they will…

ALSFH Board Meets with Hawaii LG Green and St. Francis CEO Jerry Correa

July 20, 2020

Hawaii ALS Residence, Meetings, Partners

July 20, 2020, Kailua. Last month, our ALSFH Board of Directors met with both Lieutenant Governor Josh Green and St. Francis Healthcare System CEO/President Jerry Correa via Zoom to discuss the next steps towards an ALS Residence in Hawaii. After approval of ALSFH non-profit status in 2107, Board members Robillard, O’Connor, and Whittington met with Correa following the ALS Residence Initiative (ALSRI) recommendation for partnership with a non-profit, respected skilled nursing facility which shall provide the care required in an…

“Give ALOHA” to ALSFH #78937, by September 30!

September 23, 2019

Fundraising Project, Partners

September 23, 2019, Kailua, HI. The annual “Give Aloha” Campaign of Foodland and Western Union Foundation in Hawaii started September 1st to continue the legacy of founder, Maurice “Sully” Sullivan of giving back to the community. Sully’s Foundation matches individual contributions, dollar for dollar, up to $249. Foodland gives more than $250,000 annually to non-profits that participate in the program. For the second time in a row, ALSFH signed up to participate in the program. To donate to ALSFH, one simply…

Mahalo Nui Loa to Oahu Nursery Growers Association!

September 23, 2019

ALS awareness, Events, Fundraising Project, Partners

September 14, 2019, Honolulu, HI. The Oahu Nursery Growers Association (ONGA) once again has proven that it not only plants flora and foliage, it also plants goodwill in the community. The 8-member hui of nursery growers holds an annual plant sale from which it donates a portion of the proceeds. At this year’s event, on September 7 (Saturday) and 8 (Sunday), 2019, ALSFH was its designated beneficiary. The weekend sale was held at the Washington Middle School cafeteria on S. King Street. During the…

Follow-up Meeting with Lieutenant Governor Josh Green

May 16, 2019

ALS awareness, Meetings, Partners

May 11, 2019, Honolulu, HI. A follow-up meeting following the short encounter with Lieutenant Governor (LG) Josh Green on Friday of the Governor Proclamation was intensely gratifying to those who were present: Shaun Brewer, an Army veteran with ALS; Brandi, his paid caregiver; Katherine O’Connor, ALSFH Treasurer, and I. In the hour-long meeting at the LG’S comfortable meeting room with a wall-long stunning view of downtown Honolulu, we discussed the different options for location and sponsorship for an ALS Hale…

Dr. Matteo Zallio: “ALS Residence should make resident feel he is outside even when indoors.”

April 24, 2019

ALS awareness, Meetings, Networking/Learning Opportunities, News, Partners

24 April 2019, Kailua, HI. Dr. Matteo Zallio presented a talk on “Lifelong housing design: user feedback evaluation of smart objects and accessible housing for older adults” yesterday, which Ronaele and I attended. It was held at Gartley Hall 018 at the University of Hawaii. Dr. Zallio is currently on Oahu as guest of the UH Myron B. Thompson School of Social Work (SSW) Center on Aging and the UH School of Architecture. He is a Fulbright Researcher at Stanford…