ALS awareness – Page 6 – ALS Foundation of Hawaii

ALSFH presents at PNA-Hawaii Outreach Class and United Caregivers’ Inservice Training

October 14, 2018

As part of community outreach and promotion of ALS Awareness, ALSFH President Divina Telan Robillard presented at two separate events yesterday, October 13. The Philippine Nurses Association-Hawaii has been holding a community outreach program of a total 10 classes, every Saturday, on different aspects of heart care entitled “Healthy Heart, Healthy Family” program, starting last October 6 at the St. John the Apostle and Evangelist Church in Mililani. Robillard presented on “Get Energized: Exercises for a Healthy Heart,” which included…

November Nostalgia-themed Bowling Benefit Set at Beleaguered Pali Lanes

October 11, 2018

ALS awareness, Events, Fundraising Project

ALS Foundation of Hawaii will hold a nostalgia-themed Bowling Benefit Event on November 10, 2018, Saturday, at the Pali Lanes at 120 Hekili Street, Kailua, HI. Ongoing registration for team, sponsor, and individual participant packages. Games are scheduled every 2.5 hours. Bowlers are encouraged to bring pictures and stories about Pali Lanes to share and to dress in their favorite era bowling attire. Friendly team competitions will help raise funds to establish Hawaii’s ALS Residence for people with ALS (Lou…

ALSFH Plans November Fundraiser at Controversial Pali Lanes in Kailua

October 2, 2018

ALS awareness, Events, Fundraising Project

ALSFH’s next fundraiser is a bowl-athon in Kailua Pali Lanes bowling alley in early November. The 3-person Board is currently discussing details with the bowling alley management. The ALSFH fundraiser, tentatively set for November 10, will give local residents a chance to play in the Pali Lanes in a community-led fundraiser before its demolition in early 2019. Landowner Alexander & Baldwin plans to create a community park in its current location. The fate of Pali Lanes is the subject of an…

Foodland’s Give Aloha Program Ends; ALSFH Thanks Donors

October 2, 2018

ALS awareness, Events, Fundraising Project

Foodland’s month-long Give Aloha 2018 Program has just ended. The annual program usually begins and ends in September. ALSFH joined the more than 300 other non-profits that have registered as recipients of this popular, local philanthropy of the Sullivan family. The program promises to match each donor’s contribution up to $249. After all donations have been recorded, the Program, which pledges a total of $250,000 yearly, will give the individual non-profits all donations collected in its name. The Program will…

Ewa Beach Site of First Volunteer-led Benefit Yard Sale This Saturday

September 26, 2018

ALS awareness, Events, Fundraising Project

Shaun and Renee Brewer are hosting a yard sale fundraiser for ALSFH at their home in the Kapilina neighborhood of Ewa Beach THIS Saturday, September 29, 8am-12 noon. It is part of the neighborhood-wide Annual Sale. Set-up will be at 7 am, Saturday, at the Brewer Residence at 5227 Iroquois Avenue in Ewa Beach. Drop-offs and pick-ups can be arranged with Divina Robillard, 256-3932. All proceeds will benefit ALSFH. The Brewers have been staunch supporters of ALSFH from the start. Shaun…

ALSFH Visits Cheryl Kellett at Home

September 23, 2018

ALS awareness, Service provision

After an acute episode of pneumonia, Cheryl Kellett decided to leave the nursing home. She wanted to spend the last days of her life at home in the care of a hospice team. Her family supported her decision. Home is in Kalihi, where the loving family reconfigured their living room so Cheryl can look out into the street through the picture window and see who’s at the door. ALS is an isolating disease; situating the ill person in a place…

Foodland’s Give Aloha Program Starts: Donate to 78937 at Checkouts

September 9, 2018

ALS awareness, Fundraising Project

September 9, 2019, Kailua, HI. Foodland and Western Union Foundation in Hawaii started its annual “Give Aloha” Program on September 1st to continue the legacy of founder, Maurice “Sully” Sullivan of giving back to the community. Foodland gives more than $250,000 annually to non-profits that participate in the program. For the first time this year, ALSFH signed up to participate in the program. Katherine O’Connor, ASLFH Treasurer, constructed its sign out of recycled cardboard. “I spent less than $2 on…

ALSFH Surpasses $1000 Goal in FB Birthday Fundraiser in 48 Hours

August 25, 2018

ALS awareness, Fundraising Project, News

August 25, 2018, Kailua, Hawaii. Board of Director members, Katherine O’Connor and Divina Telan Robillard are celebrating their birthdays this month. Katherine’s birthday is August 26 and Divina, the 29th. To celebrate their birth month, both BOD members created fundraisers on Facebook. Divina’s Facebook fundraiser goal of $1000 was surpassed within 48 hours. Eighteen FB friends donated directly to the fundraiser which continues for one more week. Katherine also has a FB fundraiser continuing for another week. The total…

Amateur Writers Convene for Book Project

August 8, 2018

ALS awareness, Fundraising Project, Meetings, News

August 7, 2018, Honolulu, Hawaii. A group of amateur writers started meeting with UH Professor Emeritus Virgie Chattergy to develop a book focusing on experiences living with ALS. As of this writing, group membership consists of Ronaele Whittington, Justin Hendrix, Rita Melville Alarcon, Catherine Sophian, Alexa-Rae Telan, and Divina Telan Robillard. Last year, the Filipino Association of University Women (FAUW) published an anthology of essays entitled, “Pinay: Culture Bearers of the Filipino Diaspora.” It was edited by Professor Chattergy and…

Waipahu High School Students Learn About ALS and Nursing Careers

July 19, 2018

ALS awareness, News

July 18, 2018. Waipahu, HI. Students in Dr. Ric Custodio’s “Survey of Health Professions” class at Waipahu High School learned how Divina Telan Robillard’s nursing background helped in providing care for her husband, Britt Robillard, PhD, when he was diagnosed with ALS in late 1984. Dr. Robillard lived decades beyond the average 3-5 year lifespan of pALS. He passed away in 2015, four years after retirement from his faculty position in the University of Hawaii Department of Sociology. Telan Robillard…